Information de reference pour ce titreAccession Number: | 00012500-201808000-00022.
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Author: | McConkie-Rosell, Allyn *,1; Hooper, Stephen R. *,2; Pena, Loren D. M. *,1; Schoch, Kelly *,1; Spillmann, Rebecca C. *,1; Jiang, Yong-Hui *,1; Cope, Heidi *,1; Undiagnosed Diseases Network; Palmer, Christina *,4; Shashi, Vandana *,1
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Institution: | (1)Division of Medical Genetics, Department of PediatricsDuke University Medical CenterDurham NC USA (2)Department of Allied Health SciencesUniversity of North Carolina at Chapel HillChapel Hill NC USA (3)Undiagnosed Diseases NetworkNIH Common FundBethesda MD USA (4)Departments of Psychiatry and Biobehavioral Sciences, Human Genetics, and Institute for Society and GeneticsUCLALos Angeles CA USA
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Title: | |
Source: | Journal of Genetic Counseling. 27(4):935-946, August 2018.
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Author Keywords: | Undiagnosed disease; Parent; Depression; Anxiety; Coping self-efficacy; Health care empowerment; Tolerance of uncertainty; Whole exome sequencing; Diagnostic odyssey.
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Language: | English.
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Document Type: | Original Research.
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Journal Subset: | Life & Biomedical Sciences.
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ISSN: | 1059-7700
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NLM Journal Code: | 9206865
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DOI Number: | https://dx.doi.org/10.1007/s1089...- ouverture dans une nouvelle fenêtre
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